Entries Tagged 'Alzheimer’s Disease' ↓

“I am returning to the Aegean Center in a few weeks for the fall term, which may be my last as a student.  I do not expect any sort of position to be offered, nor do they need anyone to work for them.  My future is very uncertain these days and I feel very much at sea.  This is an uncomfortable feeling but perhaps I should accept that this is where I am at right now, let it go, and take what life has to give me.  I am grateful to be where I am, doing what I do and surrounded with support that I have not asked for.  My actions should be my gratitude and I will work on that.  In the past few months I have become very aware of how much a one-day-at-a-time this program is, especially when it comes to character defects.  I can only be the best sober person I can be today, not tomorrow.  The world is an open book and what I have to do is remember that certain pages, or even chapters, do not represent the whole of my story.  To use a metaphor I like, I am steering my small vessel through, if not uncharted waters, then at least oceans I have not yet sailed.  My compass is not spinning wildly but I have lost sight of the safety of the shoreline which for any sailor is a chance-filled situation.  I have maps and charts to guide me, gifts from others who have come before.  I need only maintain my heading, weather storms, doldrums and smooth sailing as part of the journey and make landfall when I see it.  In short I am making a journey that all people must make yet to me my course is unique.  What I sometimes fail to recognize is that there are other small boats in this same shipping lane.  From high above it is really an armada, all of us tacking back and forth, trying to find the best wind to fill our sails.  Older sea-charts have blank spaces on them which read “here there be monsters” but these bogeymen are only the manifestations of my own character defects and not real.  If I truly have faith in God then I should not worry, but rather pay attention to the compass, hold the rudder in a firm hand and stick to the heading.  It is only at the end that I will be able to look back and see from whence I have come.”

I wrote this in an email to a friend this afternoon.  Since that time I have gained a level of acceptance for my future, my life and my being that I have rarely felt.  I have been able to let go of much fear in the past few days. I feel the root of this ‘letting go’ began when I decided that it was time to leave the care-giving of my mother to the caregivers and slip into a healthy stream of life.  At a meeting tonight an AA friend told me he is moving to Albany to re-energize a gay activist group he was a big part of in the 1980s.  The time has come again for this group to act.  This has inspired me to think, “Why not Albany?  Why not an urban center with a large community?”   If I were to try to predict my path for the next few years, or set a goal of life along predetermined lines, I would be selling myself short.  I wish to be happy, joyous and free, with the emphasis on ‘free. This is what I will practice, one day at a time.

Johnnyboy

I am feeling the stress of pre-travel.  There seems to be too much to do, but if I break it down into tasks, there really isn’t.  It seems to be a matter of use of energy more that actual work.  Here is what I am doing before I leave in March…

1. Finish my editing work for the new magazine.

2. Ready work for one, but possibly three shows to be hung before and during my absence.

3. File two sets of taxes.

4. Pack a large box of clothes and gear for the trip, to be sent on ahead of my arrival.

5. Arrange my finances for the 3 1/2 month absence.

6. Have a staff meeting here at the house and make sure all the tasks are delegated.

7. Let go, let go, let go….

What it comes down to is my happiness.  How happy do I want to be today or am I so stubborn that I need to be right all the time?

Johnnyboy

I wanted lots of snow, and now I have it-about three feet in spots here in Somewheresville due to winds and drifting.  It is supposed to end late this afternoon, which will be good and I am glad it’s finally winter.  As mom would say, “Well it is December so it’s time we had this…”

Christmas was quiet and a little sad.  Since it was just my elderly mother and I there wasn’t much hoo-pla or goings-on, but that’s alright.  I was a little disappointed that my sister who lives closest to us didn’t come down for even a night or two. Mom would have loved that.  This is the sibling who has grown somewhat distant in the past year or so.  I imagine that she’s having emotional difficulties in dealing with my mother’s aging and so forth, but then again, I am only imagining this. It would have been nice to see her and mom would’ve gotten a kick out of it.  The other sister is doing well and on her way with my niece on a little trip before the niece goes back to the Women’s College she is attending.  She’s practically a straight-A student which is a big testament to her mother and the Waldorf School she went to in Maine.  In many ways I am jealous.

I am jealous because I could have thrived in that kind of environment, and there were, and are still, two of these schools quite nearby–a Steiner School just across the border and a Waldorf just up the road.  My father, unfortunately, is narrow-minded and traditional when it comes to education.  His problem was that I could never focus on discipline and my studies and was always doing well at what I wanted to do and not what he wanted me to do.  After reviewing my past I am convinced that I have ADD.  I show all the classic symptoms.  His own ignorance prevented me from blossoming and growing.  Instead he stunted my growth with insults and invectives, accusing me of being lazy and stupid.  I remember once that he called me a “goddamn moron”.  I shit you not.  Sixth grade in Iowa.  This is from a man who claims to love me?   I have always wondered who it was who told me that I was stupid and lazy.  I always knew it was him, but was incapable of admitting it to myself.  I always blamed someone else.  No wonder I believed him–he was my father and fathers do not lie.

I had a visit with him last weekend in the Big City as well.  It was a painful 12 hours long and I felt better the more distance I put between the two of us when I left on Sunday.  I can’t bear to be around him.

I guess I have some resentments around my family, but maybe that’s natural given the time of year.  I am two weeks into my 9th year of sobriety and much has improved in my life–no thanks to most of them, by the way.  I need to set some new ground rules. For a start, no more books or clothes for gifts.  If you ask me what I want and I tell you and you get me something else, I am sending it back to you.  Unless its flowers.  I like those.  And coffee.

Johnnyboy

I have finally finished all of the paperwork needed for my final 12 credits in school.  What a horrible and humiliating process this has been; to justify the work I have done in one school (far superior to the one I currently attend) to a bunch of pencil-pushing bean counters.  Just plain stupid.  If I didn’t know better I’d think I was the subject of discrimination!  We shall see.  I’m pretty sure they’ll find a way to fuck me in some fashion.

I have been invited to be a part of an arts community here which makes me enormously happy, but nervous.  They like my work and want me to be in with them.  This makes sense for some reason.  All of the other traditional paths set before me this summer have come up short: the wedding work–a dud–the work with the pro interior guy–fizzled from nothing.  So it seems like my HP is saying, “Get out there and do it yourself, and take the help when it is offered, but don’t count on it!”  So be it…

I have joined our house up with a local CSA in my little town.  This way we can get a box of assorted veggies every week for the next 13 weeks and be part of a community group at the same time.  I went last week and I was saddened to see that although many people have signed up for and take advantage of this great resource, there were no names on the list of real locals, except us.  The rest seemed to be folks who have transplanted themselves from the city or elsewhere.  This means that many townspeople are still shopping for produce at large supermarkets and buying truck veggies, instead of locally grown and seasonal stuff.  It all comes down to education, in my opinion, and choices.  Without knowledge one cannot make choices.  Knowledge is power.

I have to admit, though, that when I walked into their little store and met the man who is running the operation it made my choice easier…hot damn.  I could crawl over that thing for a few hours…Nice eyes too.  Apparently he’s already dating some other guy, though.  I can dream.

I qualified at my local gay AA group the other night and it felt really good and whole.  Very comfortable and they were able to get to know me a little bit better.  Some good responses.  It felt nice to be able to be ‘out’ in a way that I cannot at other AA groups in the area.  Still, the fellowship rocks and I am slowly getting out in the world.  I attended a dinner last night with some AA and non-AA friends.  the food was superb and I had a good time, but I was a little put off by some of the conversation.  Some of the guests had a lot in common, namely the Big City club scene from the late 1980s and early 1990s.  Not my thing-and I was busy working and practicing my drinking at that time, but I felt envious and left out of the conversation just the same.

OK.  I am off to do some shopping, hit the gym, and take some pictures along the way.  Tomorrow I take my mother to se ‘Oklahoma’ at the nearby Three Corners Art Center.  This will be fun for her-and me too, I hope.

Johnnyboy

The AA World Convention is next weekend and I will be there! San Antonio here I come!  I am meeting my friend Jeanne from…well, she lives everywhere.  She’s a gypsy.   There is supposed to be around 50,000 people converging on San Antonio. It will be quite the time.

I am through with weddings.  I just don’t have it in me.   Too many drunk people and I don’t like the vibe.  I do have one commitment in the fall, but that will be a small and sober affair and I owe it to the bride to do the shoot.  She will do the post-production.

The Lesbian and Gay AA meeting is really nice.  I feel very safe there and even though there are quite a few folks who are not queer, it is obviously a safe place for them too.  Plus, it’s on a saturday night and it’s over by 7PM.  This means I can go to the speaker meeting up the road that needs support.

Mom’s doing well and I am really excited about the convention…WooHooo!

Johnnyboy

I have discovered that if I really work the 12 Steps and frame my life within their guidance, I am much more serene, happy and successful at living than if I were to disregard them or take them granted.  It is all about my spiritual program and acting, not thinking, soberly.

My mother is very excited about my upcoming trip to Greece.  She keeps on reminding me that “your grandmother would be so proud of you” and that she is proud of me as well.  I have been able to help her these past years and still do today.  She is in much better shape than she was last year,mostly due to the introduction of the O2.  She will do fine during my absence.

My cat, on the other hand, is not so well.  She is losing her back teeth.  She has gingivitis.  This has been addressed by the vet but their response is that although we can care for our pet’s teeth, some breeds of cat have bad teeth to begin with. Poor Sweetie Pie.  Other than that she is the sweetheart with a temper that she has always been.

Off to Greece in 5 days!

Johnnyboy

It’s pouring rain outside and windy.  The temperature is around 50 degrees.  It’s January.  In two days the weatherman says the temp is supposed to drop to a high of 25.  Back to winter we go.

I am off to Greece in 36 days.  I ran through a test-pack of my carry-on camera/shoulder bag and it’s not too heavy, plus everything is well distributed.  I am bringing two film rangefinders (my Voigtlander R4M and the old Canon QL17 GIII) and my small Canon Digital Rebel XT with a 28-135mm lens and a 50mm.  The school said that it is not necessary to bring a digital camera, but if you are comfortable with a specific one, to do that.  The other option is that I bring the Beast (Canon 50D) and its lenses.  That would increase my weight considerably, so I am leaving the Beast behind.

Mom is doing very well, but is nervous about my leaving.  I am nervous as well.  I am moving into a new realm of travel and having to turn a lot over to HP while I am gone.  It is good practice for me since I should be doing that every day anyway.

My significant relationship is going well, as far as I can tell.  I like it the way it is, but I am unsure about her.  I think she wants marriage and children and that is not in the cards for me.  Today I will ask her about these things.  It is better to know than to try to be a mind-reader.

More will be revealed!

Johnnyboy

In 57 days I head back to Greece for the spring semester.  I will be there until June 1oth and then return for a lovely summer.  I have some work lined up for the summer and early fall, so I’ll be happy to do that.  I will be assisting a photographer friend with some weddings and then shooting her wedding in September.

I am taking two bags with me, as usual.  My backpack, with most of my clothes, incidentals, toilet kit, etc…and my large Domke camera bag, which will hold two cameras (film and digital), three lenses, battery chargers, batteries, paperwork for travel, and a few odds-and-ends.  The film I will buy in Greece.  I can stash it in the over-head bin.  It’s not huge, but bigger than the Timbuk2 messenger bag which I will also bring– stowed in my backpack.  It is still the best “walking around” bag I have found.

I am having issues these days regarding home care, it seems.  All the women are doing great, but I am having a tough time.  Mom has aged a great deal since last spring, and even though her mind is better and the O2 has improved her life, I want to make sure that she is in the best hands when I leave.  So I am over-micromanaging and hovering.  This is not good behavior, I know, but I cannot help it.  One of the women, at least, bugs the crap out of me and, although she and mom get along and she is a gentle, kind soul, she can’t figure out that this is a job and she needs to treat it like one.  This is not an experiment in social living or communal dynamics.  It’s our home, I’m her employer, and if she can’t deal with it, she’s gone.

I am dating lovely woman from California who is also in recovery.  We are very relaxed, there is little or no baggage, and it is fun.  That’s all you get to hear about her.  She is not blog fodder.

When I return from Greece I will have to write three short papers and submit them to my school so I can get credit for the three courses I will take in Greece.  This is a humiliating and backwards process and reminds me that I am happy that perhaps I can say ‘goodbye’ to SUNY Empire State College this summer.  Although it has improved my life, the bureaucratic bean-counters deserve little or no thanks for sitting on their rapidly widening asses and pushing virtual paperwork.  Once I receive my diploma, then I will write a letter to the ESC president and complain.

Drama, drama…

Johnnyboy

I have finished and handed in the final draft of my thesis on Yugoslavia in the 20th century.  This has been a huge endeavor and represents 5 years of study, research and travel.  It is done.  I felt good, at the end, in making some bold presumptions concerning the future of SE Europe, and that was it.  Now there is a space in my life…What’s next?  I still have to write some personal words about my goals for photography for the b/w darkroom course I am engaged in and finish the small portfolio I have started.  I can do the lab work next week and write the paper today.  Then I will have finished the semester, take the fall off, and cross my fingers over the spring semester in Greece.  I have begun thinking that even if I do not get in to the school, that I will go anyway for the time and visit the southern Mediterranean during the off season, finishing up my trip with the Greek convention.  In many ways I need a break from the former Yugoslavia and Greece and Turkey might be the ticket.

The date did not happen. I asked and she said ‘no’, but nicely.  The experience put me in an emotional tailspin that landed me on my pity-pot for a few hours.  I lost all gratitude for the above experiences as well as the whole of the past 7 years of sobriety.  I eventually snapped out of it and let it go.

Mom has bursitis in her hip. She also thinks she has been driving her car for the whole year-and-a-half she has been in bed, in the hospital, or whatever.  What a shocker for her.  ”Bullshit”, she said.  ”I can drive…I still have my licence.” “Sorry, but you cannot.”  I guess we should all be thankful that she can fight back, but that’s all he can do.  She cannot win.  She’ll wreck the car if she gets behind the wheel.  Time to keep an eye out.  She might try to make a break for it…

Johnnyboy

My paper on Yugoslavia is done.  I have handed in the final ‘first draft’ but there isn’t much to correct, in my opinion.  The bibliography will be adjusted and tacked on, but what should I call it the paper?

I have been doing a lot of old-time AA service these days: driving guys around to meetings and so forth.  there has been one kid that I have been driving to meetings.  He is, in my opinion, a real mess.  He is on 15 different medications for bi-polar, addiction, etc…and I am not sure if I would call him sober of not since one of them is a med that keeps the urge to use heroin at bay.  That’s chemically induced clean-time.  I’m glad he’s not my sponsee.  If he ever asked, I would have to say ‘No.’

Mom is doing well and her mood and memory seem to be leveling out in a good and happy space.

I have asked a woman from a nearby AA group out on a date…yet again.  This will be the third (?) attempt at dating and it is pretty low-key.  She lives in the Big City most of the week and I have asked her to be my date at a photography opening in early November.  Nothing serious, just the show, then maybe a quick bite and then I have to head back home on the train.  I am not even considering sex…well, I suppose I am, but that’s normal.  I am not expecting it, that’s for sure.

I have registered for the 2010 International AA Convention being held in San Antonio, Texas.  It will be a big deal, with about 80,000 people in attendance.  AA holds it every 5 years.  How fun!  I am thinking of driving the 4000+ mile round-trip journey, but that is far away from now.

Johnnyboy