Mom is better but school is becoming a drag…

My mother has come back to ground after 5 weeks of wandering in her mind.  It can be frightening for her, and dismaying as she is sometimes aware of what is going on. The past week, however, has seen a smoothing out of the rough edges.  Most of the time she knows where she is and, thankfully, she has not forgotten who I am or her other family members.  Her condition is called ‘sundowning’ and it causes her to become disoriented in the early morning after waking and beginning around 4:30PM until about 7:30PM.  I think much of it actually has to do with light and stimulation to her eyes.  Her attitude towards this can be upsetting for her, but she seems to be taking it in stride.  In short, she knows that she is safe and loved and at home.  What a relief.

In my academic life I am up against another bureaucratic wall.  I am currently finishing my history thesis and working in a darkroom for an independent study–this you all know.  After this summer is through, I will have only 20 credits left to fulfill, all of which are electives.  I have submitted the changes to my degree plan.  One of the changes is a possible 12-credit semester in Greece next spring at The Aegean Center for the Arts on the island of Paros.  I have visited the school already and met the director, John Pack.  I would be taking Digital Photography, Figure Drawing, and The History of Photography.  That would leave only 8 credits left before graduating.  The ACotA has a credit exchange program with a huge list of colleges and universities here in the US and abroad, including several from  the same state institution I attend.  It is also accredited with the Association of American Colleges and Universities.  This seems like a no-brain-er and  it would be except for a woman named Milly Dean (not her real name). She is on the academic assessment board at my school and probably one of the reasons I had such hard time last year with my Prior Learning Assessment for culinary arts.  She says that since the Arts Center is not “regionally accredited”,  Empire State College cannot transfer the credits.  She has also denied any of the changes I have made on my degree plan.  I have finished my major; the only credits left are electives, which I am taking in the arts and photography in preparation for trying to get an MA or an MFA.

My mentor is working on this for me and I will go above Ms. Dean’s head if I need to. The worst case scenario is that I transfer all my credits to SUNY Purchase and finish my BA there.  I have been told that there are two reasons Milly Dean has it in for me (and others as well).  The first is that a creative strategy for learning does not fit into her neat little unimaginative box.  The second is that ESC receives no money if I go to Greece.  It comes down to the fact that Milly Dean and others like her have no imagination and, maybe, but only maybe, are even jealous of those who do.

It is sad to see that the world of education has been co-opted by the bean-counting idiots who sit on their fat asses and eat chocolate all day.  This is true.  I’ve seen it. They have fat asses and they eat chocolate all day.  The counting of beans is an idiomatic statement.

Goings on at home, i.e. The New Protocol…

Mom is adjusting to the O2 scene very well.  She instinctively knows how to adjust it on her face when she needs to blow her nose and hasn’t complained about having to wear the cannula.  The new twist is her mental state.  She doesn’t think she is at home, but rather has been brought someplace else.  We have seen this before, but not at this level of insistence or depth.  It is common with dementia and Alzheimer’s patients to experience this, and it ill only progress deeper.  Last night she woke up several times and wanted to “go home”.  Soon we she will want to make telephone calls to her brother who has been dead since 1984.  Such is life.  As she progresses in her dementia new protocols are put into place to accommodate her needs.

The power went out last week during a big storm and luckily we had backup O2 for her.  This being said, it is time to have a generator installed.  I have done some investigating and a local fellow is coming over this afternoon to fit us with the correct unit.  The price is reasonable for us and the sense of security is priceless.  It is one thing to have the power go out in July, when the nights are merely unseasonably cool.  I don’t want this happening in the fall or winter and be stuck without a furnace, running water, air compressors or telephones  for any period of time.

I’m handling this pretty well.  It is heartbreaking-true.  There is nothing I can do except make sure she is safe and cared for.  The decline now will be swift, I hope, thus lessening the periods of panic and confusion running like frayed threads through her synapses. 

A few months ago a good friend in the program (who took care of both his parents and his wife as they died) told me that when she finally does die I won’t know what to do with myself.  He’s right.  I can feel it already.

I am off to the 41st New York State Convention of Alcoholics Anonymous this weekend.  I will be taking the train, thus saving me and my car a 14-hour round trip drive.  I can plug in my laptop and get some work done.

Btw…”cannula” is Latin.  It means “reed” or “tube”.  It is also where we get the word “cannoli”.